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When our daughter was first diagnosed with VATERs Association, we felt so helpless. We began searching for as much information as we
could, but the more we looked the more we realized we were unable to find another example of someone with the EXACT conditions
as our Abby. When searching for treatments for her vertebral and rib abnormalities we again realized how unique each
child is with his/her "problems". This "uniqueness" for us caused a great deal of anguish. We wanted to read about
another child that had the exact same problems as Abby and how that child was treated for those problems. We wanted
so desperately to find reassurance that Abby was going to be okay - and we thought if we could find another child, just like
Abby, that had been successfully treated it would mean Abby could be too. When
we found Shriners and discussed treatment for Abby's complex spinal deformity, we again wanted to know of an exact similarity
so we would be able to know 100% what to expect for our daughter. Unfortunately no two children are identical and so
there is no 100% similarity with each experience. But, there are many, many commonalities between the surgical experiences
that all of our children are being considered for or have undergone. The very fact that each child is a potential candidate/recipient
for surgery to deal with a spinal deformity means that we all have a common experience. Sharing these commonalities
is what this website is about.
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